Although sometimes I am astonished by doctors and cancer, I am never surprised at what goes on in the fight with cancer.
First, I spent all night throwing up. I had an insane stomach ache that would not go away, even after the throwing up. I think I got about an hour of sleep and the same went for Kath. The only one that slept was Alek. I am not sure if it is what I ate, the combination of what I ate or just the chemo. I think it was what I ate and the chemo. It is 5:45pm and I still feel like crap.
Second, I spoke with my doctor and was surprised that he wanted to take me off the Nexavar. He felt the drop in the Prolactin level was not enough. After numerous discussions and talking, we realized that I was not taking the right dosing. So I really pushed back and asked my doc why we would not give this some more time. The counts are going in the right direction. Yes the side-effects are bad, but most chemo has side-effects. I asked why stop taking something that is working and go to a clinical trial that is an absolute crap-shoot. After further discussion, we (more like I) decided to give this another couple weeks to see if the chemo will push the counts down some more. It is crazy to think that I am making many of the discussion for my care. It is kinda sad. I guess doctors have more then one patient, I just wish that there were answers and options that were viable. But I guess, I will do what I have done for 13 years now. Keep plugging away at this disease they call CANCER.
CANCER SUCKS!!!!!!!!!!!!