Treatment??????

Well I had to take another week off due to my platelet count being down. The counts are actually still not at a level yet where I can get treatment. The doctor at Dana Farber went and asked the Drug company running the Clinical Trial if they could make an exception for me to start the second cycle of the trial. We had a blood test of the Prolactin taken and the results were not positive or negative so we really want to try a second cycle. That is going to start tomorrow (April 2nd).

I also have had some additional pain in my back, spine and shoulders. I was also experiencing some numbness in my hands and arms. They decided they need to do an MRI because numbness and tingling in the arms is not good. Well that was the case. The tumors in my upper back are continuing to grow into the bones and around the spinal cord. This is not good. They are not sure if they can radiate this area since they have radiated there several times before. Surgery is also not an option because there are too many tumors and they could not remove them in one very extensive surgery. So right now we have to do the second cycle of the clinical trial and see if any more options arise in the mean time.

Other than that I have not been motivated to do much. I sleep and I do it well. I am very bored and can not wait for nice weather to arrive so I can go for a walk and sit outside during the day.

Alek is growing and changing everyday. He is starting to say some words and is really starting to become a toddler. He is testing his powers for sure. He is great.

Well I will keep in touch.
Kris